Why we cannot allow this post code lottery to continue
Posted by Pauline Latham, MP for Mid Derbyshire, at 10:19, Fri 5 August 2011:
As many of you will know, the Cancer Drugs Fund was part of the Conservative Party Manifesto prior to the last election, and was carried forward to become a part of the Coalition Agreement for Government last year, in order to help thousands of Cancer patients gain access to the drugs that their clinicians believe will help them.
I know that it was warmly welcomed by Cancer patients and their families up and down the country. Indeed, the Cancer Drugs Fund has to date delivered relief to 2,500 patients, a wonderful achievement.
However, since becoming an MP, I have sadly become aware of some major inconsistencies in the workings of the Cancer Drugs Fund.
I have been contacted by two Cancer patients recently, both of whom have told me that the drugs that they need to keep them alive are being denied to them by the NHS locally. Naturally, I was surprised and saddened to hear about this.
What shocked me even more however, was that both of my constituents would have had access to the drugs which they need to stay alive, because they are widely available in other parts of the country for the type of treatment that they require. For example, one constituent requires a drug called Avastin, which NHS East Midlands will not fund for second line treatments. However, should she or anyone else within this NHS area move just twelve miles away to Staffordshire, they would fall under the West Midlands NHS region, and would be entitled to the use of this drug on both first and second line treatments. In the East-Midlands NHS region, they do not believe that this drug is effective in keeping people alive as a second line treatment for Bowel Cancer.
However, she is living proof that this drug does work, because she has funded over £50,000 from her resources including her retirement money, heirlooms, a car and other possessions. This has kept her alive for an extra two years. Therefore, their logic is flawed.
Another constituent needs the drug Rituximab to prolong her life, her prognosis is currently less than three years to live, and the drug takes six months to work. If she lived in London or elsewhere in the country, she would have this drug without argument. It isn’t only one or two consultants that have recommended this drug, but three. And yet still, the East Midlands refused to fund it.
This is a real-life and potentially deadly example of a postcode lottery for Cancer treatment, that we must not allow to continue - it is simply just not fair.
I recently raised this scandalous situation in the Chamber of the House of Commons, where I asked the Minister if he could help people in such a situation, because this inequality of treatment due to something as random as a postcode is frankly, just wrong.
I was pleased with the Minister’s response, who like me, knows this to be an extremely important issue. Furthermore, in his response he said that he will look into this matter carefully in order to seek an explanation for the differences.
I concur with the Minister of State for the Department of Health who agreed with me that assurances must be sought so “that these processes are genuinely transparent, so that justice is seen to be done and people can gain access to the fund”
I strongly believe in local decision making, but I also believe in a free and fair NHS. The current system, whereby you could miss out on life saving drugs upon the basis on your address, is not the system that anyone wants to see, nor is it one that politicians want to allow.
When it comes to determining access to life-giving drugs, it is vital that we provide a level playing field when it comes to such important issues, which will affect people all over the UK. I will be doing all that I can as a Member of Parliament to ensure that this is the system that we allow.
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Posted by George Taylor, 10:49, Fri 5 August 2011: (Is this post abusive?) #
Sadly, this situation became inevitable when NHS trusts were set up to administer funds in their own area - the NATIONAL Health Service became a collection of REGIONAL health Services. It can only be rectified by reverting to national control of policy and approval of drugs.
Posted by Christopher Walker, 11:19, Fri 5 August 2011: (Is this post abusive?) #
How is this situation going to be helped by the Tory led plan to privatise the nhs?
Posted by Barbara Richell, 13:13, Fri 5 August 2011: (Is this post abusive?) #
How can we have a National Health Service without National standards and control. Pressure needs to be put on those making the decisions locally to adhere to NICE recommendations. The increasing privatisation of health care does not help this situation. Could pressure also be put on wealthy drug companies to reduce costs of these drugs. Barbara Richell
Posted by Angela Greatorex, 15:39, Fri 5 August 2011: (Is this post abusive?) #
I agree with the previous posted message on the NHS being made a National Health Service as it currently is not and I also have a friend who is currently fighting for her life with drugs being witheld from her as the EAST Midlands Health authority will not fund the appropriate drug, this also affects her family as they are sure to lose her should the right decision not be made. Please Pauline Latham our MP, fight to get things made right. After all, with all that has gone on just lately in Derbyshire, you may not get another chance at the ballot box, please government get this right NOW.It is our future you are playing with.
Angela Greatorex
Posted by Paul Munro, 17:00, Fri 5 August 2011: (Is this post abusive?) #
How absurd. An MP who probably supports the Governments agenda on increasing privatisation in the NHS complaining about automonous decision making. Perhaps surreal is a more appropriate description. A National Health Service should be national - nothing more, nothing less; but that is not Tory policy.
Posted by Catherine Ingram, 17:53, Fri 5 August 2011: (Is this post abusive?) #
There are many inequalities within the NHS and this is just one of them. Good luck Pauline with trying to change this situation - I hope that you will take on other such issues with health and social care because the current NHS reforms will certainly be creating yet more unfairness and boundaries in the future.
Posted by Ernest G. Redfern, 09:43, Sat 6 August 2011: (Is this post abusive?) #
It's nice to see a politician fighting for what is right on all fronts regardless of party autonomous decision making. Carry on the good work Pauline, fight for what you believe in and what you consider the electorate require to retain their standard of living, that's what you were put in office for.
Posted by Christopher Tipping, 21:49, Sun 14 August 2011: (Is this post abusive?) #
Greatest of respect Mrs Latham, the administration of health care is not what we asked you to represent us in parliment for....thats a job for the NHS. We would like you to make sure wqe have a navy capable of keeping the chinese at bay in the midst of this centuary and we would like you to get us the hell out of this EU debacle